Press and Media

HarborPath Newsletter - July 2026

For too many families, the first time they hear the word SUDEP is after they have lost someone to it. This summer, three states took real steps to change that. In Virginia, the Commonwealth's newly signed biennium budget includes funding in each of the next two years for the Office of the Chief Medical Examiner to produce full, written findings in any death consistent with Sudden Unexpected Death in Epilepsy. The budget requires those cases to be referred to an institution that can help grieving families submit their loved one's medical history to the North American SUDEP Registry, and it directs the office to publish SUDEP resources on its website. Every case reported to the registry sharpens researchers' understanding of who is at risk and why. Virginia has now created a clear path to that knowledge.

2026-07-26

HarborPath Newsletter - February 2026

HarborPath is excited to share a meaningful new collaboration with Canine Assistants, an organization doing remarkable work training service dogs for individuals with epilepsy. We're beginning work with an ambassador golden retriever named KJ, who was born in July and is just starting a roughly two-year training journey with Jennifer Arnold, executive director of Canine Assistants, and her team. The goal is for KJ to eventually work with children and serve as a HarborPath ambassador to help raise awareness, understanding, and advocacy around epilepsy and seizure disorders.

2026-02-19

HarborPath Newsletter - January 2026

As we begin 2026, I’m encouraged by the momentum building around HarborPath’s mission and by opportunities ahead of us to serve unmet needs. Legislative sessions are now underway in some states and approaching in others, creating a critical window to advance policies that protect patients and save lives. Through the HarborPath Policy Council, we are engaging in target states to advocate for practical solutions that expand access to care, improve health education and reduce preventable deaths.

2026-01-20

HarborPath Newsletter - November 2025

HarborPath was founded on a simple but powerful belief: to serve unmet needs. Over the years, we’ve seen countless examples of communities and individuals navigating life without the support they deserve—but recently, one need has become especially urgent. Families and individuals living with epilepsy face challenges that go far beyond their diagnosis. From the high cost of essential medications to gaps in education that could prevent tragedies like Sudden Unexpected Death in Epilepsy (SUDEP), too many patients are left navigating a complex and sometimes overwhelming system alone.

2025-11-24